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Found 2 from your keywords: author="Benedan, Laura"
cover
Chapter Quality of life in Health Care: focus on patients
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Pilo, CinziaBenedan, LauraMariani, PaoloDigrandi, AngelaZenga, Mariangela

In this work, we show a narrative review conserning instruments to measure the quality of Life in Health Care from a patients point of view.

Edition
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ISBN/ISSN
9791221501063
Collation
5
Series Title
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Call Number
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cover
Chapter Patient-generated evidence in Epidermolysis Bullosa (EB): Development…
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Pilo, CinziaBenedan, LauraEl Hachem, MayGaleone, CarlottaMariani, PaoloTadini, Gianluca

Epidermolysis Bullosa (EB) is a group of genetic conditions that cause fragile and blistering skin. Although there are different types of EB, which differ in severity, their signs and symptoms overlap. As a result of this disorder, patients face an unbearable burden in their lives, and their Quality of Life (QoL) is negatively affected at every life cycle stage. Nevertheless, the assessment of …

Edition
-
ISBN/ISSN
9788855184618
Collation
5
Series Title
-
Call Number
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