Chapter Patient-generated evidence in Epidermolysis Bullosa (EB): Development of a questionnaire to assess the Quality of Life

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Chapter Patient-generated evidence in Epidermolysis Bullosa (EB): Development of a questionnaire to assess the Quality of Life

Pilo, Cinzia - Personal Name; Benedan, Laura - Personal Name; El Hachem, May - Personal Name; Galeone, Carlotta - Personal Name; Mariani, Paolo - Personal Name; Tadini, Gianluca - Personal Name;

Epidermolysis Bullosa (EB) is a group of genetic conditions that cause fragile and blistering skin. Although there are different types of EB, which differ in severity, their signs and symptoms overlap. As a result of this disorder, patients face an unbearable burden in their lives, and their Quality of Life (QoL) is negatively affected at every life cycle stage. Nevertheless, the assessment of the quality of life of these patients is scanty.

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Series Title: -
Call Number: -
Publisher: : Firenze University Press., 2021
Collation: 5
Language: English
ISBN/ISSN: 9788855184618
Classification: NONE
Content Type: text
Media Type: computer
Carrier Type: online resource
Edition: -
Subject(s): Epidermolysis Bullosa
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Statement of Responsibility: -

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Cataloger: Angga
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Validator: -
Digital Object Identifier (DOI): https://directory.doabooks.org/handle/20.500.12854/92479
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Chapter Patient-generated evidence in Epidermolysis Bullosa (EB): Development of a questionnaire to assess the Quality of Life

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